Additional Resources
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The Galactosemia Handbook
Learn MoreCreated by the Galactosemia Foundation with the support of Jaguar Gene Therapy, this handbook was developed from peer-reviewed data, clinical guidelines, and input from renowned galactosemia experts for guiding patients and caregivers.
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Managing Galactosemia by Life Stage
Learn MoreGalactosemia conversation starters for you and your doctor.
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Galactosemia Symptoms at Different Stages of Life
Learn MoreThis guide details common health issues that can occur in galactosemia patients of all ages.
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Galactosemia School Guide
Learn MoreEducation and tools for key milestones in a child's galactosemia journey.
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Galactosemia Support
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Galactosemia Support Group
Learn MoreThe GSG is a self-help organization that connects galactosemic patients and their families and offers support when it is most needed.
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European Galactosaemia Society (EGS)
Learn MoreThe EGS aims to share information, promote awareness of and to stimulate research into Galactosemia within Europe.
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Australian Galactosaemia Support Network
Learn MoreAs part of Rare Voices Australia (RVA), the Australian Galactosaemia Support Network focuses on broader systemic policy development and change.